As May bursts into bloom, heralding the arrival of longer days filled with sunshine, it also brings an incredibly important global campaign to our attention. Just as the flowers reach out and bask in the warmth, we too must turn our efforts to raising awareness of a complex and debilitating disease. ALS Awareness Month stands as a testament of hope and unity, inspiring and empowering millions of people all around the world to join together in the fight against Amyotrophic Lateral Sclerosis (ALS). This annual event aims to spread knowledge, inspire critical research, and ultimately provide support and solutions for those affected by this complex neurological disease.
ALS, also known as Lou Gehrig’s disease or Motor Neuron Disease (MND), is a rapidly progressing neurodegenerative disorder that affects the nerve cells responsible for controlling voluntary muscles. With no known cause or cure, the disease can have a devastating impact on individuals and their families, taking away their ability to walk, talk, eat, and even breathe. Through ALS Awareness Month, we seek to shine a light on the experiences of those living with this condition, as well as learn more about the latest groundbreaking research and treatments.
In this blog, we will delve deeper into the enigmatic world of ALS, exploring its signs, symptoms, and risk factors, while also introducing you to the courageous heroes of the ALS community – the patients, caregivers, researchers, and advocates determined to make
1. ALS Awareness Month is in May
ALS Awareness Month, observed annually in May, aims to raise awareness about amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease affecting nerve cells in the brain and spinal cord. Throughout the month, various organizations and individuals promote research, advocacy, and support for those diagnosed with ALS and their families, ultimately working towards finding a cure for this devastating disease. [1][2]
2. ALS does not stop during a pandemic
Despite the ongoing global pandemic, ALS continues to be a pressing concern for those affected by the disease. The increased challenges faced by people with ALS and their caregivers due to vulnerability to COVID-19 highlights the importance of raising awareness and providing necessary resources during these unprecedented times. [3][4]
3. COVID-19 exacerbates difficulties for people with ALS
The COVID-19 pandemic has significantly increased the challenges faced by people living with ALS. Due to their heightened vulnerability, individuals with ALS and their caregivers are practicing extreme social distancing, leading to isolation and limited access to traditional care and resources. The pandemic has further exacerbated an already difficult situation for the ALS community. [5][6]
4. The ALS Association is adapting and expanding services
The ALS Association has been diligently working to adapt and expand their services in response to the COVID-19 pandemic. They have transitioned essential care services to virtual and online platforms, ensuring the safety of the ALS community while continuing to fulfill their mission during these challenging times. [7][8]
5. #GivingTuesdayNow, ALS Youth Action Day, Mothers Day, Memorial Day activities planned
During #GivingTuesdayNow, ALS Youth Action Day, Mothers Day, and Memorial Day, various activities are planned to engage and empower young supporters in the fight against ALS. These events aim to raise awareness and funds for ALS research, inspire hope, and envision a world without the disease. Participation from youth across the country plays a crucial role in spreading awareness and supporting the ALS community. [9][10]Source : ascls.org
6. National ALS Registry helps connect people with ALS to researchers
The National ALS Registry plays a crucial role in connecting individuals living with ALS to researchers seeking answers and potential treatments. By gathering vital information about those affected by the disease, researchers can gain a deeper understanding of ALS and work towards developing better therapies. [11][12]
7. Participation crucial in finding answers about ALS
Participation is vital in finding answers about ALS, a neurodegenerative disease without a known cure. The National ALS Registry connects people living with ALS to researchers, helping to gather important data on the disease’s causes and potential treatments. By enrolling in the Registry, patients make a significant contribution to ALS research. [13][14]
8. Brad Dusek’s story of fighting ALS
Former NFL player, Brad Dusek, bravely battles ALS after being diagnosed in 2018. He emphasizes the importance of fighting back against this progressive neurodegenerative disease. By joining the National ALS Registry, Dusek and his family are contributing to critical research that seeks to better understand and eventually cure ALS. [15][16]
9. National ALS Awareness Month raises awareness about the disease
National ALS Awareness Month is an annual campaign held in May in the United States, focusing on spreading awareness and raising funds for research for amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease. The Centers for Disease Control and Prevention recognizes this event, with the ALS Association sponsoring the National ALS Advocacy Day and Public Policy Conference. [17][18]
10. ALS Registry Dashboard improves user experience
The ALS Registry Dashboard is a valuable tool designed to enhance user experience by providing a comprehensive display of the Registry’s recent epidemiological findings on ALS, completed risk factor surveys, funded research, actively recruiting trials, and Biorepository data. This user-friendly platform enables easy navigation and access to vital information, demonstrating the Registry’s commitment to modernization and improved public accessibility. [19][20]